Having an incident where you have aphasia is life changing. You can feel completely disconnected.
Meeting others who truly understand the difficulties of aphasia can make a huge difference to your recovery.
Our charity grew out of a speech and language therapy conversation group that offered just that. However, it became difficult to keep the group going in the NHS. Yet this small group sat at the coffee table and were determined to keep their conversation group going.
Passionate about supporting people with aphasia they set up as a charity in 2017; to offer opportunities to talk to others and share experiences, as well as raise awareness of this relatively unknown condition.
Our group has grown from strength to strength and our mission is to build a community of support for people living with aphasia in Exeter, East and Mid Devon.
Our friendly group meets for support, friendship and good conversations with others who understand about aphasia.
Our Drop-In, Singing and Creative Art sessions offer opportunities to socialise and inspire confidence for people living with aphasia.
Our charity values our links with the local speech and language therapists and other services in the area and welcome new people to our group.
As a charity, we welcome donations. All our activities are free.
Covid has affected all our activities but that’s not stopped us.
During the pandemic we have moved to online Zoom meetings and telephone support. Many people have joined us during lockdown.
Living with Aphasia is affiliated to these charities.
Our charity is led by people with aphasia, volunteers and trustees.
Two of our trustees have aphasia and are also part of the management team of the group. Our social media is led by people with aphasia.
Barbara is passionate about building up friendships and support for people with aphasia. Barbara was formerly a Speech and Language Therapist before setting up the charity and becoming the Chair of Trustees in 2017.
Sandhy has had aphasia for over 7 years.
Even though it has taken time, Sandhy has gone from not speaking, not reading, not walking, not understanding to a person that is still getting better - every day.
Our charity helps us to meet up with extraordinary people who all have aphasia. Sandhy loves meeting these kinds of people and, like, her, they are all moving 'onwards and upwards!
Emily was 25 years old when she suffered from a severe stroke in 2017. Em has always lived by her favourite catchphrase 'always remember to sparkle and shine!' and she hopes she can spread a little of this through this amazing charity!
As the former chief executive of the British Polio Fellowship, Andrew is keen to put his skills and experience to use by improving opportunities for people living with and affected by aphasia.
Nicola heads the Speech and Language service for Exeter, East Devon and Mid Devon. She formed the group as an NHS service nearly 15 years ago and many of the original founding members are still involved today.
Paul is a Consultant Physician in Stroke and Older Persons’ Medicine at the Royal Devon and Exeter Hospital as well as our treasurer trustee.
Kim Gould is a retired mental health nurse and is very happy to give her time as a trustee to support such a worthwhile charity.